Topical Steroid Withdrawal Syndrome Is Not Your Final Destination

Though this is a journey through hell... you are not stopping here! This is your place on the web for support, advice and lots of love. A place for you to feel seen, heard and understood. I hope you find the resources on this site valuable and give you the tools you need to fight the fight. Let us all continue to spread TSW awareness, together.

Topical Steroid Withdrawal Syndrome Is A Very REAL Condition...

Though this is a journey through hell... you are not stopping here! This is your place on the web for support, advice and lots of love. A place for you to feel seen, heard and understood. I hope you find the resources on this site valuable and give you the tools you need to fight the fight. Let us all continue to spread TSW awareness, together.

The One & Only,

TSW Healing Journal

The Journal Designed Specifically For The TSW Warrior

Topical Steroid Withdrawal is difficult and painful but the one thing we all need is the strength to persevere and the right tools to aid us on our journey. With this journal you can feel inspired and empowered during this arduous journey, and know that you are in the company of fellow warriors just like you that are dedicated to focussing on their transformation and bright life ahead!

The One & Only,

TSW Healing Journal

The Journal Designed Specifically For The TSW Warrior

Topical Steroid Withdrawal is difficult and painful but the one thing we all need is the strength to persevere and the right tools to aid us on our journey. With this journal you can feel inspired and empowered during this arduous journey, and know that you are in the company of fellow warriors just like you that are dedicated to focussing on their transformation and bright life ahead!

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TSW / TSA / RSS

A Blog for Those Going Through Topical Steroid Addiction, Withdrawal, and Red Skin Syndrome.

HEY! I'M JEN, YOUR FRIEND & FELLOW TSW CHAMPION

HEY! I'M JEN, YOUR FRIEND & FELLOW TSW CHAMPION

Together, We Will Hold Each Other Up & Spread Hope

Together, We Will Hold Each Other Up & Spread Hope

I'm just here trying to heal myself while spreading awareness and offering some wisdom along the way. I hope you come back here often and use this blog as a resource for your healing journey. Oh, and I'd love to chat and get to know you better so don't hesitate to reach out! Sending you lots of love.

I'm just here trying to heal myself while spreading awareness and offering some wisdom along the way. I hope you come back here often and use this blog as a resource for your healing journey. Oh, and I'd love to chat and get to know you better so don't hesitate to reach out! Sending you lots of love.

Not Sure You Are Dealing With TSW? Here Are The Signs...

Everyone's symptoms and timelines are different but there are many symptoms that we all share and that are common signs that you are in fact going through Topical Steroid Withdrawal. Here are the signs to look for and powerful resources to help you with your research.

Not Sure You Are Dealing With TSW? Here Are The Signs...

Everyone's symptoms and timelines are different but there are many symptoms that we all share and that are common signs that you are in fact going through Topical Steroid Withdrawal. Here are the signs to look for and powerful resources to help you with your research.

If You're A Subscriber Already, Awesome! If Not, Get On That!

This show has brought me so much joy, peace and comfort during my own healing journey. I've documented my journey as well as had the honor of bringing so many warriors on to share their journey and knowledge! This is a Podcast with Purpose!

If You're A Subscriber Already, Awesome! If Not, Get On That!

This show has brought me so much joy, peace and comfort during my own healing journey. I've documented my journey as well as had the honor of bringing so many warriors on to share their journey and knowledge! This is a Podcast with Purpose!

Resources For You

TSW Skin

My Journey With TSW Skin

April 01, 20224 min read

True Life: I'm Addicted To Steroids.

Welcome To The Blog!

You've been seeking answers from every dermatologist, doctor and all over the internet, wondering what on earth this unbearable skin issue is. You know something's up and you've been suffering and silenced for far too long. This podcast is going to bring awareness to the brutal reality that is topical steroid addiction and withdrawal syndrome. It will give you practical mental and physical tips to help you along your journey and provide you the strength you need to push through each day. You'll hear from real people battling this illness, as well as experts in the field, and I'm also going to share with you what's happening as I battle and conquer TSW. You are not alone, you're not crazy and you will heal. If there's one thing I know it's that anyone going through this hell is a warrior. My name is Jennifer Powers and I welcome you to TSW: Journey to Healing.

TSW Skin

My TSW Skin

Hey. My name is Jen and I currently am in Topical Steroid Withdrawal. This blog is dedicated to documenting the progress that my TSW skin is going through, while offering you resources, tips and messages of hope from myself and other warriors.

Whether you found this blog through your own research on the web, or you had some angel share it with you, I want to thank you for being here.

It is my every intention to provide you with peace and comfort, and give you tools and tips that may help ease this painful miserable journey that you are on. The goal is to bring awareness to TSW because the crazy reality is that no one really even knows about it!

So, who am I? My name is Jen. I'm a born and raised Philly girl and I was born with eczema. I was officially diagnosed at the age of 2, so from the age of 2 to now being the age of thirty-five, I have been on and off of topical and oral steroids to for that many years. Yikes. It's scary to see that in writing even for me. These steroids were given to me to help me "treat" my eczema, which, as we know, cannot treat eczema, rather, can help eliminate or lessen some of the symptoms. Steroids are not a cure. They do not find the root cause of an issue. And, they are so potent and can cause more damage than they can help.

TSW Skin

Since my own TSW skin journey began a few months ago, I have become incredibly passionate about spreading the word. As of December 1st, I have been completely off of all steroids! Whether you are at day 1 of your tsw skin journey or year 1, or maybe you're a care-taker of someone going through this nightmare, I want you to know that this blog is a safe space for you, a resource to come back, something that you come to read (or listen to if checking out the podcast) to get hope and some answers. I want you to feel empowered during this hellish ordeal and want you feeling inspired to conquer this. I want you to feel a sense of calm and comfort and know that although this tsw skin journey can feel very lonely, you are NEVER alone in this.

I would love nothing more than to get to know you on a deeper level. I would encourage you to go to the ITSAN Facebook Group which is where all of us warriors share our testimonials and experiences and cry with one another and hold space for one another. I have met some incredible people there, lots of who have become guests / will be guests on my podcast show, TSW Journey to Healing. If you would like to share your story and be on the show, I'd love to have you! Just send me a message and we can set that up.

The world needs to know about this terrible condition. My mission is to not only bring awareness to individuals but also to the medical community. I had no idea I could become addicted to these drugs. No one ever told my mother when I was very young and maybe they didn't even know themselves that this was a possibility. It's now very apparent that you can and it needs to be shared to save others from this tragic outcome.

As I said, I am now four full months topical steroid free I am so happy about that. If you are struggling bad right now, just know that I feel you and I see you. We are going to heal and get through this tsw skin torture. Please subscribe here and/or to the podcast and feel free to leave comments and questions.

My heart is with you friend. When you feel those moments of despair and darkness, like a hole you cannot climb out of, just know we are in this together. This is not the end for you. Your recovery is possible and will happen. You are stronger than you even know.


Please Subscribe & Leave Feedback!

Don't Forget to Subscribe to The Podcast & Help Us Spread Awareness!

TSW Skin

Let's Connect:

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You Are So Much Stronger Than You Know,

Your Friend In This Fight,

Jen

blog author image

Jennifer Powers

Jennifer Powers is a Blogger, Podcaster, Speaker, Entrepreneur and TSW Advocate

Back to Blog

Topical Steroid Withdrawal Facts

Stats and Facts About TSWS

140+

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50K+

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300+

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783

ADIPISCING ELIT

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Keep Calm And Book

Yourself A Holiday

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Physician Statements

George Owens

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Max Tanner

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Kim Wexler

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Billy Jackson

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“I have certainly seen Topical Steroid Withdrawal Syndrome, now multiple times. Generally, I find that these patients tend to have more widespread involvement on their body, but almost always have face and neck involved. Unlike eczema, it tends to be more red and flushing or blushing in appearance, although many patients will also have eczematous and scaly lesions at the same time.”

Peter Lio, MD

–Read more

“TSW is real. It occurs most commonly in the setting of long-term and daily medium to high potency steroid use, especially on the face. While topical steroids can be effective in improving inflammation in the skin of patients with eczema, research has confirmed the need for avoiding daily long-term use of topical steroids. For patients needing longer-term management, incorporating non-steroidal therapies and using topical steroids only intermittently (such as twice per week), will likely prevent most cases of TSW. We as dermatologists need to do a better job educating patients about how to use TCS safely long-term and we as dermatologists need to be better at recognizing this adverse effect in our patients.”

Eric Simpson, MD

–Read more

“Though the topic of topical steroid addiction (TSA) is troublesome for physicians, we should not postpone facing it. It is not a temporary tide, TSA is real. Please search articles in PubMed. At the minimum, warning of TSA as a side-effect of topical steroids must be added in the guidelines of all areas of atopic dermatitis treatment.”

Mototsugu Fukaya, MD, JDA

–Read more

“By being aware of TCS addiction and withdrawal, practitioners may be better able to help prevent this adverse effect and offer supportive care to patients in TCS withdrawal. It would also be useful for GPs to be able to discuss TCS addiction and withdrawal with patients who seek to clarify information they glean from non-medical sources.”

Belinda Sheary, BMed, FRACG

–Read more

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